Monday

You need support from others

You need support from others when you have fibromyalgia


Fibromyalgia, like many other conditions, can lead to isolation and loneliness. Social isolation is a problem for many people and especially those with chronic illness and chronic pain.  A huge part of Fibromyalgia is the pain which in itself is isolating as we feel that others do not understand or want to know what we are going through. This can make us withdraw.

Sufferers need to make an effort to get support and I feel this really makes a difference on so many levels. It is a great way to find out what treatments may work for others and may be worthwhile to try. It is wonderful to just be with others who understand what you are going through. Connecting with others can provide much comfort.

One friend, one person who is truly understanding, who takes the trouble to listen to us as we consider our problems, can change our whole outlook... DR Elton Mayo

Luckily there are a few options for finding support - we can attend a pain clinic (try your local hospital), find a local support group that has get togethers or find some on line support if getting out is not possible due to mobility issues or closeness of meetings. 

Below I have started a list of different Fibromyalgia support groups available and I would love to hear from you if you have some to add.

SUPPORT MEETINGS
Fibromyalgia Meetups - worldwide
National Fibromyalgia and Chronic Pain Association (NFCPA) List of American Support Meetings
Canadian Support Groups

ONLINE SUPPORT:
FIBRO FORUMS 
Daily Strength Forum Fibromyalgia Support Group
Fibromyalgia Forum founded in 2008 and run by volunteers who have Fibromyalgia.
Patients like me Fibromyalgia Forum with over 112,000 members.
MyFibroTeam
Patient

FACEBOOK GROUPS: There are hundreds of these groups. I have listed the two I am in.
Fibro Blogger Directory with nearly 3,000 in the group
Fibro Files with over 1,500 people in the group


FIBRO SUPPORT in Australia will be a coming blog - watch this space

1 comment:

  1. This is the best thing I have heard all day - yes we all need support from those who understand

    ReplyDelete

Thanks for your input