Thursday

Men with fibromyalgia

fibromyalgia in men
Fibro EA
"Men [with fibromyalgia] often feel broken, even suicidal," says Gavin Levy, an Austin, Texas-based writer who was diagnosed with fibromyalgia four years ago, at age 33. "We've all been there. It feels like your masculinity has been taken away to a degree. You are a provider and protector, then suddenly that role is reversed."

Recent studies indicate that the prevalence of fibromyalgia is increasing worldwide even though a 2012 study suggested that fibromyalgia is underdiagnosed in general, and even more underdiagnosed in men. The results suggest that patients, particularly men, who meet the fibromyalgia research survey criteria are unlikely to have been given a diagnosis of fibromyalgia.

Anyone can develop fibromyalgia but it is most common in adults with the highest rate in women. Men do get fibromyalgia and the ratio is reported at 9:1 that is 9 women for every man. Researchers are not clear why women have higher rates of diagnosis but I believe that it could be that men are either not reporting their symptoms or not being diagnosed with fibromyalgia as many people, doctors included, still believe that fibro is universally a syndrome that women get.

fibromyalgia symptoms in men


Do men and women have the same fibromyalgia symptoms?
Men seem to have a different symptoms than women according to a 2012 study
Men with fibro demonstrate a lower pain severity than women but a longer duration of symptoms and disability. Men have a higher pressure pain threshold (PPT) over the 18 tender points and over the second metacarpal and tibialis anterior muscle than women. In men, the intensity of ongoing pain was associated to a more intense painful response over the neck. This study proposes that there may be a different observable type of fibromyalgia in women and men and confirms that women exhibit lower PPT than men.



fibromyalgia in men and resources
Voices of Fibromyalgia
WEBSITES BY MEN ABOUT FIBROMYALGIA:
Fibro Guys blog
Fibromyalgia - Peter's journey
Men with Fibromyalgia has a forum
FibroNews by Doc @Fibromen (twitter)

OTHER RESOURCES FOR MEN:
PINTEREST Board Men with Fibromyalgia
Facebook groups:
Men with Fibromyalgia (over 600 members)
Fibro For Men (over 5,000 members)
Fibro Support for Men ( over 1,500 members)

ARTICLES:
Fibromyalgia Rates May Be Higher Than Thought, Especially in Men: New diagnostic criteria broaden the definition of a complex syndrome.
Examiner Jan 2013: Fibromyalgia in men often goes undiagnosed, Mayo Clinic study finds


SOURCES FOR THIS ARTICLE:
Fibromyalgia, diagnosis and prevalence. Are gender differences explainable? Bartels, E., Jacobsen, S., Jesperson, A., et al. (2009).

Prevalence of fibromyalgia: a population-based study in Olmsted County, Minnesota, utilizing the Rochester Epidemiology Project.
Vincent A, Lahr BD, Wolfe F, Clauw DJ, Whipple MO, Oh TH, Barton DL, St Sauver J.
 
Gender differences in pain severity, disability, depression, and widespread pressure pain sensitivity in patients with fibromyalgia syndrome without comorbid conditions.
Castro-Sánchez AM, Matarán-Peñarrocha GA, López-Rodríguez MM, Lara-Palomo IC, Arendt-Nielsen L, Fernández-de-las-Peñas C

How Fibromyalgia Affects Men Article at WebMD

PubMed: Fibromyalgia in men and women: comparison of the main clinical symptoms

LINKED UP AT FIBRO FRIDAY No.16

6 comments:

  1. I have been enjoying this wonderful "Invisible Illness" for 12 years (diagnosed time) took a few years to get the diagnosis which I declared to be false! I joined a forum to learn more about it and was One of 4 men on a forum of 8,000 women. Great odds but to bad everyone was so sick and of course I am happily married :) Since then I have found thousands of other men like me. I think most men ignore the pain until it becomes impossible to. I even had surgery. they put a plate in my neck from c2-c5 to "fix" my shoulder and arm pain. It did not work but like most guys I thought it was a "real" problem not fibro. I was wrong, I finally admitted it, I had a "womens disease" then came osteo, followed by a thyroid failure..more womens diseases..but fact is Fibro is a MANS disease too. Thanks for posting this article. I think I shall steal it for my blog if I can find the energy.....Doc fibronews.com

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    1. Thanks Robert, it's great to hear your story and we need more guys to do this so it stops being considered a "women's disease". It's hard enough having it let alone all this extra concerns

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  2. So glad to see so resources for men with fibromyalgia. There are not many, so any is a relief to see!

    I found your post at the Fibro Friday at Fibro Blogger Directory.

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    Replies
    1. Thanks Buba4Turtle for finding my fibro blog and taking the time to comment. You are 1 in a million.

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  3. Great post........Fibromyalgia is frequently associated with psychiatric conditions such as depression and anxiety and stress-related disorders such as posttraumatic stress
    disorder.Acupuncture in Ellicott City

    ReplyDelete
  4. Valuable Post.
    It is helpful to fibromyalgia patient.
    Thanks for sharing !
    Fibromyalgia support groups

    ReplyDelete

Thanks for your input